Congenital Diaphragmatic Hernia (CDH)
Congenital diaphragmatic hernia, often called CDH, is a serious condition where a hernia (small opening) forms in the diaphragm. This opening can allow organs from the belly to move into the chest, which can limit the space your baby’s lungs need to grow properly.
At the University of Chicago Medicine Fetal and Neonatal Care Center (FNCC), our expert team cares for both you and your baby before and after birth.
Find a maternal-fetal medicine specialist
How serious is CDH?
When belly organs crowd the lungs, it can cause breathing problems and high blood pressure in the lungs.
The seriousness depends on:
- Size and location of the hernia
- Whether the liver moves into the chest
- How well the lungs develop
- Any related genetic or heart findings
How do we diagnose CDH?
- Ultrasound before birth
- MRI to check your baby’s lung size
- Heart ultrasound (echocardiogram)
- Tests for genetic conditions, if needed
How do we treat CDH?
Before Birth
We perform detailed tests, including an ultrasound and MRI.
- You will meet with a genetic counselor and have an amniocentesis.
- We will help you plan your delivery.
In some advanced cases, we find that fetoscopic endotracheal balloon occlusion (FETO) is a good option to help the baby's lungs grow before birth. If so, we'll connect your family with a regional center that offers this procedure.
During Delivery
We make sure a NICU team is ready to care for your baby. Vaginal delivery is safe in many cases unless there are other health problems.
After Birth
Your baby's care may include:
- Special ventilators
- Lung medications
- ECMO (heart-lung machine)
- Surgery to close the hernia once your baby is stable
Risks
CDH can lead to:
- Lung and breathing problems
- High blood pressure in the lungs
- Feeding and growth challenges, such as failure to thrive
- Delays in learning or brain development
We review risks with you and offer support every step of the way.
Need more info or want to talk about CDH care?
The first step is a prenatal consultation.
Call us at 773-702-6118 to learn more.
Meet Our Fetal and Neonatal Care Specialists
At the Fetal and Neonatal Care Center, your maternal-fetal medicine physician leads your care team in providing the best care possible for you and your baby.
We're also one of few birth centers in Illinois with a Level IV NICU just steps away, which enables us to support seamless transitions to neonatal care for babies born with the most complex and acute conditions and illnesses.
Convenient Locations for Maternal-Fetal Care
Request an Appointment
We are currently experiencing a high volume of inquiries, leading to delayed response times. For faster assistance, please call 1-888-824-0200 to schedule your appointment.
If you have symptoms of an urgent nature, please call your doctor or go to the emergency room immediately.
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