Craniosynostosis and other craniofacial syndromes usually are the result of a birth defect that causes one or more connections in the skull to close prematurely affecting normal brain and skull growth. Craniofacial anomalies also can occur in adulthood as a result of trauma or tumors.

Signs & Symptoms

  • Abnormal shape of head

  • Abnormal shape of face

Treatment

Craniofacial anomalies diagnosed in childhood are generally treated by surgical intervention early in life. Adults with craniofacial problems that were diagnosed and repaired in childhood may have ongoing needs as a result of late complications from surgery or the need for further corrective surgeries.

Trauma and tumors can lead to craniofacial abnormalities similar to those seen in children with craniosynostosis. Treatment typically involves surgical intervention, which could include multiple surgeries in a planned and staged fashion.

Transition of Care

At University of Chicago Medicine, the transition from pediatric to adult care is seamless. Our craniofacial team includes neurosurgeons and plastic surgeons with advanced training in pediatric neurosurgery and craniofacial plastic surgery. This specially trained team cares for both children and adults with these syndromes.

Plastic and reconstructive surgeon Russell Reid, MD, PhD., with Trish Lawson and her daughter Molly Lawson, 15 months old, at the Duchossois Center for Advanced Medicine (DCAM)

Craniofacial Anomalies Multidisciplinary Program (CAMP)

Our Craniofacial Anomalies Multidisciplinary Program (CAMP), one of the largest in the region, provides a thorough, team-based approach for the evaluation, diagnosis and treatment of children with craniosynostosis.

Learn more about our CAMP program