My favorite animals are elephants, giraffes, zebras, gorillas, monkeys, and sloths.
He was almost 18 months old, and he started getting really sleepy and not really eating, not really playing like a toddler is supposed to. So we took him to the doctor -- to our pediatrician -- to see what he could have had.
And they thought maybe he had a virus. It took about a week before we finally went to the ER and they did a scan, and that was when they found a tumor in his abdomen.
You never think something major like this would happen to you.
It was just sort of a quick whirlwind where all of a sudden, you're looking at the hospital, taking care of a child that has gone from fairly happy and playful to very sick, very quickly.
So Charlie was treated on a pilot clinical trial that was conducted here at the University of Chicago as part of a Children's Oncology Group clinical trial. And what we were piloting was whether or not the addition of a radio labeled new medication called MIBG would improve the outcome for children with newly diagnosed neuroblastoma.
As a family, I think it was important for us to maintain as much of a normal childhood for Charlie as much as possible. We definitely try to stay strong for him.
But the treatment started working right away and he started feeling better very, very quickly.
Charlie's remarkable. He is just a delight, and he actually -- even when he was very sick, you would walk into his room and there was always a smile on his face. I mean, he managed to get through this ordeal, and his parents also were remarkable. He has, so far, done very, very well.
Everything seems pretty normal for him. He's just full of energy.