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The University of Chicago Medicine Cystic Fibrosis Center was founded in 1967 and provides specialized care to patients with cystic fibrosis (CF), an inherited lung disease that requires management throughout your lifetime.
Our adult cystic fibrosis experts understand the distinct challenges facing adult CF patients and provide individualized care to ensure you have the best quality of life possible.
Today, people with CF are living longer than ever — some in their fifties and sixties. Many are leading rich lives, balancing work, family and social activities.
Our goal is to make the transition from adolescence to adulthood easier for people with CF. We do this by building a long-term partnership with our patients and providing them with a tools and support to lead meaningful lives while managing their condition.
UChicago Medicine's Adult Cystic Fibrosis Program is committed to helping adults learn to live longer, healthier lives with CF through education as well as treatment. Our staff helps coordinate the Chicago Cystic Fibrosis Awareness Day and produces a quarterly newsletter for families affected by CF.
In addition, as a teaching institution, we are committed to educating health care providers on the care of adult patients with CF.
You should schedule one comprehensive annual visit as well as shorter, follow-up appointments every three months.
You will meet with several members of the team, including the physician or nurse practitioner, the clinic nurse, the respiratory therapist, the dietitian and the social worker.
Each year, we perform a thorough evaluation to monitor and track the progress of your CF. Tests may include:
Even if you are feeling good, you should come to your appointments. This lets us to monitor your health over the course of the year. It also helps you stay up-to-date on your medications to help prevent your CF from getting worse.
The gowns are protection for you. As health care providers, we come in contact with the many different bacteria, and we do not want to spread these from person to person.
Your sputum sample is tested for different types of bacteria as well as what antibiotics will work to kill the bacteria. Over time, some strains may become resistant to different antibiotics. Sputum cultures allow us to provide the best possible treatment for you.
Spirometry is an important tool to monitor lung function. It helps us determine if we should change your treatment plan.
You play an important role on your care team. To make sure you receive the best care: