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Sturge Weber syndrome is a rare condition that involves a capillary malformation (port wine stain) and abnormalities of the brain and/or eye (glaucoma, a condition associated with damage to the optic nerve).
Individuals with Sturge Weber syndrome often have a large capillary malformation on the forehead or upper eyelid. Children with facial port wine stains should be assessed by a physician who specializes in diagnosing and treating vascular anomalies.
The diagnosis and treatment of Sturge Weber syndrome often requires several types of pediatric experts. The vascular anomalies team at Comer Children's evaluates, treats and monitors the vascular malformations associated with the syndrome and works closely with other specialists involved in the patient's care.
Laser treatment often is used for vascular malformations related to Sturge Weber syndrome. A pulsed-dye laser, which uses a light beam to gradually destroy the dilated blood vessels, has been shown to lighten port wine stains.
The vascular anomalies program at Comer Children's offers an integrated and comprehensive approach to the diagnosis, care and management of vascular malformations. Our multidisciplinary team of pediatric experts works together to educate families and to evaluate and treat children with all types of these vascular lesions.