Once your child has been diagnosed with neurofibromatosis (NF), it is important to begin a careful, organized program to spot any changes which may be due to NF and to keep good records. Ask doctors for a copy of the examination report to keep for your own records. You may also want to keep copies of your X-rays or scans so that you can discuss them with different doctors. Make regular visits to the doctor as part of your routine.

Meet our Pediatric Neurologists and Neurosurgeons

While there is no cure for NF, you can do many things to make a significant difference in your or your child's life. Remember, if your child has NF, you are his or her protector. If you are affected, you must be your own advocate as well. This means you must be sure to talk to your doctor about any new problems or concerns. You can also rely on help with NF from members of your local NF support group, genetic counselors, teachers and psychologists.

 

Request a Pediatric Neurology or Neurosurgery Appointment

We are currently experiencing a high volume of inquiries, leading to delayed response times. For faster assistance, please call 773-702-6169 to schedule your appointment.

If you have symptoms of an urgent nature, please call your doctor or go to the emergency room immediately.

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By submitting this form you acknowledge the risk of sending this information by email and agree not to hold the University of Chicago or University of Chicago Medical Center liable for any damages you may incur as a result of the transfer or use of this information. The use or transmittal of this form does not create a physician-contact relationship. More information regarding the confidentiality of this request can be found in our Privacy Policy.