Bronchiectasis and NTM Research Registry

  • Observational [Patient Registry]
  • Recruiting
  • NCT01822834
Eligibility Details Visit Clinicaltrials.gov

Bronchiectasis and NTM Research Registry

The Bronchiectasis Research Registry is a consolidated database of non-cystic fibrosis (non-CF) Bronchiectasis and Nontuberculosis Mycobacteria (NTM) patients from multiple clinical institutions.

The Bronchiectasis Research Registry is a consolidated database of non-cystic fibrosis (non-CF) Bronchiectasis and Nontuberculosis Mycobacteria (NTM) patients from multiple clinical institutions. The goal of the Bronchiectasis Research Registry is to support collaborative research and assist in the planning of multi-center clinical trials for the treatment of NTM and non-CF Bronchiectasis, a progressive, non-curable disease of the lungs, which afflicts thousands of patients. The Registry will also be used to provide better insight into the study of the different types of Bronchiectasis, as well as the pathophysiology of the disorder. In 2012, in collaboration with NTM Info and Research, Inc (NTMir) and the consortium members, the COPD Foundation expanded the Bronchiectasis Research Registry to enroll patients with "non tuberculous mycobacteria (NTM) only". Prior to this time, the registry included individuals with Bronchiectasis, with or without NTM.

Gender
All

Age Group
18 Years to 120 Years

Accepting Healthy Volunteers?
Accepts Healthy Volunteers

Inclusion Criteria:

         - Over the age of 18

         - non-CF Bronchiectasis

         - Nontuberculosis Mycobacteria (NTM)

        Exclusion Criteria:

         - Under the age of 18

         - CF Bronchiectasis
  • Non-Cystic Fibrosis Bronchiectasis
  • Nontuberculous Mycobacterial Pneumonia

At a Glance

National Government IDNCT01822834

IRB#IRB18-0300

Lead SponsorCOPD Foundation

Lead PhysicianPamela Mcshane

Collaborator(s)N/A

EligibilityAll
18 Years to 120 Years
Recruiting